Over the past week I have continued to think about the interview I did. There were a few things about my interview that I have kept in mind. I met a lady at Long John Silvers and she just so happened to have a daughter with Cystic Fibrosis. We began talking and I ended up interviewing her for our assignment. The difference with her from all the other parents I have met with a child who has a disability, is that her stressed was different. The most stressful moments for her are when her daughter is in pain and she can't take the pain away. Another big factor of stress is the thought of not being able to find a cure before her daughter dies.
I have read articles and watched videos, but never have I heard that a parent's stressed is caused by not being able to help their child while they are in pain. I've heard parents fear when they think about their child's future, but never for the pain the child is in at that moment. I found it very interesting that I had not once heard that a parent becomes stress due to feeling unable to prevent pain from their child. After reading all the articles I was sure one of the stresses from the articles would be mention, but this lady seemed very encouraged. There are so many families that feel stressed and need to be encouraged. I believe the lady I met had encouragement to help her stay strong.
Gloria,
ReplyDeleteI found you blog post very interesting. I wish I could have more information regarding your interview; perphaps the questions and answers provided in the interview. I do not know much about cystic fibrious. In my interview the parent stated similiar things, her greatest hope was that her son with autism would be able to live "normal" life; completing school, getting a job, and marrying and starting a family. Parents are the child's greatest advocate. It is important as we become teachers to create that partnership with parents.